I noticed the purple rash on H Man’s hand between the watch and thumb and asked if he was on Eliquis (a blood thinner). He said, how did ya know. And I showed him the scaley purpleish rash that I had in the exact same spot.
I’m on it also, I replied.
I had just come back from a wheelchair outing with Barb to central park. And running into the H Man was both good and bad because he is fascinating, and has lived a real hippie life starting ten years before me, but he is hard to shake.
He had wanted to see my photographs since I first ran into him at the Castle so I finally invited him to my room. Not stop stories. And no way to cut him off except with a hard “I’ve got to go to sleep now.”
Part of the trouble is that his stories of seeing all the rock stars of the 60’s before they got famous, but it was just that. I remember thinking, the next day (he finally left at 9d pm) and I was thinking the next day why I couldn’t remember his stories, and it was because mostly they weren’t stories but lines about the people he knew in the old days, and advice.
Barb, I know you’re reading this, so just to let you know when H finally left and I tried to get out of the chair I was completely immobile. I had been in the chair from when we met (around 2?) until 9:30.
I had to ask one of the blue shirts to help me into bed. Luckily it was one of the normal nice ones and she even tucked me in.
The next day I got test results from the lab that showed my SED RATES which relate to RA and some times Lupus. They were off the charts.
Fortunately I have an appointment with the neurologist today, and if nothing else perhaps she can recommend someone help me put in terms of RA.
Also, I have been taking Tylenol for the lower back where the stiffness is worse, and it turns out that Tylenol doesn’t do anything for RA. Advil is at least a start.
So I have the Neuro apt. today at 3 and will go up in the chair. I think the doc will find that I’ve either gotten worse or stayed the same. But being in the center of the whole thing and now with the RA who the heck knows.